Resources
Jeremiah 17:4 Heal me, O Lord, and I shall be healed, save me, and I shall be saved, for thou art my praise.
Short Gut Syndrome Families support Group
The Short Gut Syndrome families’ support group was created to provide parents and families of children with short gut syndrome with support and resources to help them to become better advocates and caregivers for their children through discussion and education about short gut syndrome, treatments, and therapies.
Short Bowel Syndrome Adults, Kids and beyond
This is a care, share & feedback group only. It’s for Short Gut Syndrome & their families involved. It belongs to everyone to share experiences & give experiences to make living better. Some are sharing their experiences on enteral, parental nutrition, central line care along with the risks i.e. sepsis that comes with it. Many now are sharing about the drug Gattex that has been sweeping the nation since the FDA approval.This drug is to assist with absorption.
Short Bowel Syndrome Foundation
The Short Bowel Syndrome Foundation was founded in December of 2010, as a resource to help patients, family members and healthcare professionals learn about short bowel syndrome (SBS). You’ll find explanations about causes, common symptoms and standard treatments. Learn the digestive system and the various surgical procedures commonly associated with SBS.
The Oley Foundation
Founded in 1983 by Lyn Howard, MD and her patient, Clarence “Oley” Oldenburg, the Oley Foundation is a national, independent, non-profit 501(c)(3) organization that strives to enrich the lives of those living with home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking. The Foundation also serves as a resource for consumer’s families, clinicians and industry representatives, and other interested parties.
Living Life on Total Parenteral Nutrition
You must be the parent of, or the individual yourself, on home parenteral nutrition (HPN/TPN). This is not a group for medical professionals, sales, advertising, extended family members, or to allow other people a “peek” into what we experience. This is a support group ONLY for the parents and/or individual experiencing life on TPN with medical complexities.
Make A Wish Foundation of America
For children diagnosed with critical illnesses, a wish come true can be a crucial turning point in their lives. A wish can be that spark that helps these children believe that anything is possible and gives them the strength to fight harder against their illnesses. This impact is why we are driven to make every one of these wishes come true.
Intestinal Rehabilitation Centers
This is a list of several advanced intestinal rehabilitation center in no particular order. Please note this list is not exhaustive.
